Learn how to leverage your patient data with our EHR toolkits

GET STARTED: EHR TOOLKITS

Atypical-HUS

Atypical hemolytic uremic syndrome

HPP

Hypophosphatasia

NMOSD

Neuromyelitis optica spectrum disorder

PNH

Paroxysmal nocturnal hemoglobinuria

Rare diseases are not as rare
as they sound

Alexion provides toolkits to help you leverage your EHR (electronic health record) system to help triage patients suspected of having certain rare diseases with relevant patient history data, disease codes, and suspect patient lists.

EHR Toolkits

Each toolkit consists of a disease overview and a program implementation guide covering the following topics:

Evidence-based clinical pathways
Creating suspect patient lists, best practice alerts, and order sets
Appendix – Medical codes for inclusion/exclusion of clinical criteria for the disease

See Available Toolkits Above

Rare Disease Overview

This guide describes the challenge of rare disease diagnosis in general and the benefits of leveraging EHR systems to help support patient recognition.

Each of the rare disease EHR toolkits includes the following:

Disease Overview

Implementation Guide