Learn how to leverage your patient data with our EHR toolkits

Get started: EHR toolkits

Amyloidosis

ATTR and AL

Atypical-HUS

Atypical hemolytic uremic syndrome

HER2+ Cancer

Human epidermal growth factor receptor 2

HPP

Hypophosphatasia

NMOSD

Neuromyelitis optica spectrum disorder

PNH

Paroxysmal nocturnal hemoglobinuria

Rare diseases are not as rare
as they sound

Alexion and AstraZeneca provides toolkits to help you leverage your EHR (electronic health record) system to help triage patients suspected of having certain rare diseases with relevant patient history data, disease codes, and suspect patient lists.

EHR Toolkits

Each toolkit consists of a disease overview and a program implementation guide covering the following topics:

Evidence-based clinical pathways.
Creating suspect patient lists, best practice alerts, and order sets.
Appendix – Medical codes for inclusion/exclusion of clinical criteria for the disease.

See Available Toolkits Above.

Rare Disease Overview

This guide describes the challenge of rare disease diagnosis in general and the benefits of leveraging EHR systems to help support patient recognition.

Each of the EHR toolkits includes the following:

Disease Overview

Implementation Guide